Friday, January 31, 2014

Our January Sucked

January has been a rough month for us.  Rough I tell you!  I will sum it up with this picture:

That blurry gray blob in the top left corner?  His foot that was kicking a million times a second.  And yes, my children are crazy flexible.  Inherited from my side of the family.

It's quite simple really.  We traveled to Utah over the holiday for 2 weeks.  We arrived home and welcomed the massive flu for both boys.  Then add in the Polar Vortex of death- which cancelled 8 days of preschool this month and 5 days of Speech and Occupational Therapy. 

And what are we left with?  Days and weeks that are completely free of any schedule or routine.  It sounds like any elementary schooler's dream.  I'll admit it:  I was in heaven for the first few days.  It is really hard for me to carve out a schedule and routine if I don't have to.  I much prefer to hang out in my PJs all day and watch shows with my boys without a care in the world.

The kids were sick so we couldn't venture out to an indoor play area or even take refuge at a new friend's home.  School was cancelled.  The wind howled.  And the ice on the roads thickened.  After watching 80+ hours of YouTube videos we were about going crazy (more on our favorite YouTube videos later).

So suffice it to say, I will be welcoming February with wide open arms.  Bring on February and health to all!

How was your January?

Thursday, January 30, 2014

Christmas Travels Part 2

Hey, remember me?  Remember like a month ago when I said I was going to post part two of our Christmas travels?  This month has sucked rocks big time.  I'm talking lots of vomit, taking stool samples to the lab, and a crazy polar vortex.  I will explain my absence tomorrow.  For now, let's talk Christmas travels.

So once you have finally made it to your final destination and you've braved the airplane or long car trip, it's time to celebrate big time!  Seriously mama (or daddy or caregiver)!  Have a snickers bar already, give yourself a pat on the back, and put your feet up for a minute or two.  YOU ARE AWESOME!  Repeat that a few times and then get back to work.

I have a few tips to share on how to enjoy the rest of the trip.  I hesitate to share them because it is pretty much common sense.  I am hoping that I can give someone a new idea!  Here are my top 4 tips for vacation survival with kids on the spectrum:



1.  If You Are Traveling to See Family, STAY AT YOUR OWN PLACE! 

For us, this is crucial.  This might not be possible for everyone, I get it.  You've already forked out the money to fly on a plane or drive in a car for hours.  And you're visiting in-laws or grandparents or friends or whoever. Why wouldn't you just crash at their place for free?  I would say yes if your kids can handle it.  My kids just can't and that's okay. 

All of my siblings that live outside of Utah stay with their families at my parent's home.  This year two of my brothers and their families stayed there.  Most of the grand kids slept on the ground in an open room.  My parents also have 2 dogs that bark a lot.  The house is quite loud with lots of commotion, eating, dishes clanking, dogs barking, children screaming, and overall Christmas merriment.  I love the sounds of Christmas.  My boys don't love these sounds.  It can be very overwhelming for a little boy on the autism spectrum.  Don't get me wrong, they can handle some loud noise for a few hours (depending on their mood), but not constant for days on end.  If I don't provide a "safe" place for my boys to unwind, recharge, and calm their nerves (aka- a place that can be absolutely quiet) my boys don't do well.



 It is also AMAZING how well my boys will sleep on vacation if we stick to their exact bedtime routine.  Which is: bath, PJs, Tired Teddies, story, prayers, tuck boy in bed in his own quiet room and close the door.  Voila!  A sleeping child!

This Christmas we found a quaint little duplex on VRBO.  Have you heard of this website before?  We love it.  Vacation Rentals By Owner.  This rental saved us about 100 tantrums over the course of two weeks. :-)  It was so nice to be with our family during the day.  It was loud and chaotic and fun.  Most of the time the boys could handle it.  Sometimes they couldn't.  It was so nice to have the option of taking them somewhere else where they could unwind and not be amongst all of the commotion.

2.  DON'T FEED THE KIDS JUNK FOOD SNACKS!  

This seems like a no brainer, right?  Of course you wouldn't purposefully feed your kids Hershey kisses and peppermint M&M's for a whole day.  I am here to tell you that this may or may not have happened to us.  ;-) I speak from experience people!  However tempting it may be to hand your child some Christmas candy to quiet them for a minute or two, JUST SAY NO!  They will be grumpy, gassy, and then they won't have room in their tummies for a good dinner. 

It all spirals out of control when they don't have a nutritious dinner and they wake up in the middle of the night with a tummy ache or they are finally hungry.  I am not saying absolutely no Christmas candy, but just make sure they have eaten dinner before they have a few pieces.  It never hurts to let their tummies get a bit hungry.  Normally my diaper bag is stocked with goldfish crackers and teddy grahams.  The kids know it.  My bag was not stocked on this trip with anything.  It was truly one of the best things I did because my boys may not have been brave enough to eat all of the new foods they tried. Proof that he ate some type of Brazilian sausage.  AMAZING!



3.  TIRE THEM OUT!  

This also may seem like a pretty obvious one.  It's easy when you're on vacation to let the kids watch more TV than normal or to just sit around the house and relax.  There is a time and a place for that.  We want the kids to move their physical bodies and practice using their sensory system which includes proprioceptor and vestibular.  I know, weird big words. 

Proprioceptive information is sensations from muscles and joints. Proprioceptive input tells the brain when and how muscles are contracting and stretching and how joints are being compressed or stretched. It helps us to know where our bodies are in space and how they are moving. If you can run without looking at your feet, hit a baseball without looking at the bat, or pass a basketball without looking at your arm, then you are using a sixth sense known as proprioception. The vestibular system is the sensory system that responds to accelerated and decelerated movement. Think of swinging in a swing, doing a cartwheel, or riding a rollercoaster.  It is through the vestibular system that we learn directions and are aware of our body position in space. This input helps us to form a basic reference for all sensory experiences.  These are just two of the reasons my boys both are receiving occupational therapy.  Anyway, that's another story for another day.  My point is, tire the kids out!  Let them run around and roam free as much as possible!




 
4.  TAKE AS MANY PICTURES AND VIDEOS OF THEM AS YOU POSSIBLY CAN!!

I know what you're thinking.  All of the pics and videos are for the scrapbook, right?  Nope.  I use them as my own autism 'social story'.  In the autism world many teachers and therapists will use social stories as a way to teach a child a certain skill or concept.  For example, one social story book might talk about how a child will say hello and wave his hand when someone says hello to him.  Or if a child is going to the dentist you might write a social story for what will happen and what is to be expected during the trip.

It's not exactly the same, but I use these in the same way.  My children are narcissistic.  They love looking at pictures and watching movies of themselves.  We are an Apple family.  We have all things Apple.  We have an Apple TV and it is so awesome to throw our movies and pictures up on the TV.  We talk about the pictures and remind the kids what happened. 

It wouldn't be a Utah Christmas without a trip to the ER.  If you look closely you can see my fingers clasped around his ankle holding his leg and foot still for the x-ray.

 For example, while we were in Utah we took Ezra skiing for the first time.  We weren't expecting much from him.  He's only 4 and he's on the spectrum.  We just wanted a ton of videos and pictures so we could show and talk about how Ezra went skiing.  We also talk about different things that are happening in the videos and pictures.  Like how Ezra is wearing 'ski goggles' and his helmet is pink.  Children learn from talking about and experiencing life.  Hopefully the next time he goes skiing he will feel much more confident because he will remember and know what to expect from the experience.


Both of my boys absolutely LOVE dogs.  One day we will get a dog.
I hope you have found something useful for your next travel adventure!

Friday, January 3, 2014

Christmas Travels Part 1

We just got home from almost 2 weeks of Christmas holiday traveling.  While I am happy that we just sucked it up and did it, I will never do this again!  Traveling with young kids is hard enough, but throw in two boys with an Autism Spectrum Disorder and I was pretty much done after day 1!  :-)

Jason and I have our little tips and tricks that help us travel.  This may not work for everyone, but we've flown on a plane so many times with our kids that we know exactly what to do.  I would say that this was our most successful travel experience that we've had.  Again, every kid is unpredictable and totally different, so this might not work for everyone.


I have friends with children that always give me their two cents as to what they feel works best.  Most of them always tell me that we should travel during bed times.  Whether that's driving in a car all night to Florida or taking a night flight to the West coast.  We tried this about a year ago.  Worst decision we ever made in our lives!  We took a red eye flight to visit our family in the west.  It was only a 5 hour flight.  Asher was so tired that he was screaming and crying and making his body spasm.  I walked up and down the plane aisle to help soothe him and I bounced a little while I was doing it.  By the time I got back to my seat Asher stopped crying.  I thought I was a super awesome mom for saving the day and making my child stop crying.  I looked down at him and he looked up at me with wide eyes.  Then two seconds later I was drenched in throw up.  I was dripping in it.  It was all over our entire three seats in our row.  And we were only about an hour into the flight.  Both of my kids have terrible gag reflexes, but I also added bouncing to the list of no nos.  Needless to say, the only place my kids will sleep is in their own beds, not on a noisy airplane.  So we always travel early in the morning when they are already bright eyed and bushy tailed awake.

I've had friends that have also told me that I should give my kids benadryl to help them be calm and even fall asleep.  This is another one of my definite no nos.  We used to live in Northern California and decided to drive down to Southern California to spend Thanksgiving at Disneyland.  I gave benadryl to Ezra to help him fall asleep during our night drive.  Well, it did the exact opposite.  Ezra was super hyper and irritated and he did not sleep at all during our drive.  The next day at Disneyland he was such a grump because he was so tired.  Then I read the benadryl label that says that it makes some kids hyper.  That would be my kid.  It's not healthy for them, it's giving them drugs they don't need, and it is a definite NO on my list for traveling.  Instead, I always carry a travel pouch of Tired Teddies.  No joke.  They help with staying calm and falling asleep at the appropriate time to fall asleep (night time- not some random time during the day!).

This Christmas holiday we flew on a plane for 5 hours to visit our extended families in Salt Lake City, Utah.  5 Hours is a long time for the kids to sit and be quiet.  My kids hate coloring and any book I bring would last for 5 minutes of entertainment and then they would be done.  That's when we turn to the iPads.  Both my husband and I both have our own iPhones and iPads.  You can put books, movies, educational games, and anything else on them.  I know some people are severely hesitant to letting their kids play with technology items, but as a parent you have the authority to control what they are doing on the iPad or iPhone. 




First off, I don't have any games or apps on my iPad or iPhone that are not educational.  I don't do angry birds or car racing or anything else that can be a huge waste of time.  The only things that I keep on my devices are highly educational.  Also, I've disabled the wireless internet capabilities on my iPad so that the kids can't send emails (which has happened) or surf the internet or YouTube (which has also happened).  Ezra is 4 years old and he can spell and read over 50 words (multiply, lick, wave, xray, funny, the, in, scary, and sticky are some examples),  he knows all of the names of the bones in our body, he is familiar with negative numbers and realizes that they move backwards on the number scale, and he knows all of the planets and a fact about each one ("Jupiter is the biggest planet!"  "Mercury is closest to the sun!")  Now, I didn't teach him any of these things.  He learned it from different apps on my iPad.  I am in no way saying that technology should replace learning that comes from parents, but I don't think it's a big deal to let him play on the iPad for a bit.  And it's a lot more educational than any movie or cartoon that he could watch (and my kids don't watch cartoons- their choice- more on that later), so I don't let it keep my up at night.  Anyway, enough with my technology rant.

So I do let the kids play on the iPad after school.  Sometimes I let them play on it longer than I should.  I'm human and not the perfect mother.  Most of the time though I try to only let it be for an hour a day, but I am not staunch on this.  Before we travel anywhere we always go on an "iPad fast" for at least one week prior to our trip.  That way when we get on the airplane they are usually so excited that they finally get to play on the iPad that they are sometimes content for the full 5 hours.  We also download 2 or 3 new apps for the plane ride for the kids.  On the way there Jason downloaded this medical app that had you take apart the bones of a skeleton and name them.  I think Ezra was so content and happy with that app that he really didn't make a peep for 5 hours.  And it was pretty cute to hear his little voice point to the bottom of his neck and say: "Yeah, clavicle!"  And yesterday we were laughing so hard because Ezra said: "Yeah, vertebral column!"

Another thing that we do is we don't feed our kids AT ALL before we get on the plane.  Does that sound like child abuse? :-)  It's usually pretty early in the morning so they are fine not eating until the plane takes off.  If we were doing this in the afternoon then this would be different.  My point is just to do as much as you can while the plane is in the air so that it wastes time.  If you go to the airport and sit around waiting for your flight for an hour while playing with an iPad and eating a muffin, the kids are going to be extremely bored once they get on the airplane and they've already eaten and discovered the new apps.  So as far as food, we will usually buy something right before we get on the plane for the kids to eat.

Also, before we get on the plane we walk up and down the concourse.  We run after each other, chase each other, and get all of our energy out.  We let our kids roam free up and down the concourse (with us close behind them) and let them feel free.  We don't take a stroller (both of my kids have always HATED strollers).  And Jason and I both only take a backpack stuffed with snacks, sensory toys, fully charged iPads and iPhones, tons of wipes, pull-ups, and diapers.  We check everything else.

The last thing that I bring that I think is absolutely mandatory for travel is a small white board.  The kids' therapists recommended that we do this just for everyday life, and it has worked WONDERS!  Now I am telling everyone about it and spreading the word!  All kids like structure and knowing what is going to come next in the day.  That's why kids thrive on routines, because they know what is going to happen next.  But what do you do if your kids can't live life unless it is their same routine?  Or what do you do if you need to change the routine and do something else that day or go on a vacation?  It's hard!  Most neurotypical kids you can just explain to them that there is a change in the schedule.  I've seen all of my friends with kids do this.  I've heard them say: "I know Jack was going to come over and play with you today but he's sick so he can't now, maybe another time."  And just like that the kid was fine with the schedule changing.

My kids aren't like that.  I can't explain to them things that aren't concrete.  It's a little too beyond their ability yet.  So enter the small whiteboard.  It's very small.  I think the measurements are 8.5 by 11 inches, so roughly the size of a piece of paper.  It's small enough that I can fit it in my diaper bag or store it in the console of my car.  When our day is going to be different or thrown off, or if I can tell the boys are just having a bad day.  I will pull out the whiteboard and quickly draw a picture of what is going on that day.  Also when we are done with one of the activities I will pull it out again and cross it off.

So as you can see, I am not an artist.  At all.  In fact, I would have gotten a 4.0 in high school if it wasn't for that B- grade I got in art class.  Yeah, I hate art. :-)  Anyway, on this day Ezra was having a hard time getting his shoes on for school.  He kept fighting me on it.  So I drew up a little board to show him that he had to get his shoes on if he wanted to ride the bus and then have the bus take him to school.  Even though my pictures are always terrible, he gets it and it works.



My whiteboard was a saving grace while we were visiting family in Utah.  On this day it was a busy day of family overload and stimulation.  We were also visiting two different families.  So we told Ezra and Asher that we were going to go play with Sarah at her house.  It's Jason's sister's home and Sarah is the youngest that plays with my boys.  They have a big slide and snow at their house.  Then we went to visit all of my family at my parent's house.  My mom has two white teacup poodles and my boys are in love with them.  So I told them that we were going to see grandma's dogs.  Then the last one is some iPad time.  When we went back to our condo that we were renting, I let both of the boys "veg" a bit by playing some iPad.  This is his robot app.  Don't I draw a great looking robot?  Just kidding!

That's all for part 1.  I will have more tips and tricks for travel and the rest of our trip in part 2.